Jessica Smith was left needing a wheelchair last year and has undergone three surgeries due to the condition.

Endometriosis is where cells similar to those in the lining of the womb grow in other parts of the body, and can have a huge impact on sufferers' lives.

While awareness of the disease has increased over recent times, Jessica has started a campaign to improve inequalities in NHS care and eradicate "postcode lotteries".

"What we don't have at the moment is a national database or registry," said Jessica.

"There is no rhyme or reason, it is never consistent. Type one diabetes has a registry, so why not us?

Jessica, from Eccleston, was diagnosed with endometriosis when she was 25.

She has had to undergo three surgeries and had to use a wheelchair last year and uses a walking stick most of the time.

Her lungs were affected and she even was unable to write or use a phone due to the debilitating effects of the illness.

Jessica says she was refused PIP twice last year when she was very ill, and mostly relies on her partner financially.

"I had the wheelchair last year but, sadly, because everywhere is so inaccessible I could barely use it," she said.

"I couldn't even get off my street due to no-drop kerbs.

"Right now, I just use a walking stick most of the time as I'm doing slightly better after my third surgery last year."

While a petition calling for statutory menstrual leave for people with endometriosis has reached national media, Jessica believes that the issue of the NHS not having a system to track diagnosis, treatment, or outcomes, is something that needs attention to be brought to.

"There is two parts to this, awareness and can we do something.

"I feel we need to something more actionable.

"Endometriosis is finally getting more public attention with celebrities, campaigners, and MPs raising it, but despite this, the NHS still has no system to track diagnosis, treatment, or outcomes.

"Right now it takes an average of almost nine years to be diagnosed in the UK, and many women face postcode lotteries in care," added Jessica, 32.

"Other countries like Australia have shown that registries and audits can cut delays, improve treatment, and drive research."

Jessica had to give up a full-time career in marketing following her diagnosis and is currently working for 10 hours a week for a children's charity.

She believes there still a lack of awareness of how endometriosis can impact patients.

'We desperately need this registry because it'll finally show what treatments actually work, cut diagnosis times, save the NHS money, and stop people with endometriosis being left to suffer."